Children’s Understanding of Cystic Fibrosis

Some of the frequent questions asked by parents are: ‘What does my child understand about their diagnosis?’ . . . ‘What can she understand...

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Caring for Cystic Fibrosis and Your Relationships

If you are lucky, you may have a strong support structure around you that includes family, friends and local resources such as parent groups,...

Adolescence and Managing Transition to Adulthood and Cystic Fibrosis

Adolescence is the stage of development between childhood and adulthood and, for most adults, especially parents, talking about this stage is often accompanied by...

Caring for Cystic Fibrosis in Siblings

It is difficult enough to manage differences between siblings when you have two or more children with cystic fibrosis in the family,...

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How Cystic Fibrosis Affects School and Education

Children spend more than 1,000 hours in school each academic year, which is more than 12,000 hours over their childhood and teenage...

Caring for Cystic Fibrosis and Your Relationships

If you are lucky, you may have a strong support structure around you that includes family, friends and local resources such as parent groups,...

Adolescence and Managing Transition to Adulthood and Cystic Fibrosis

Adolescence is the stage of development between childhood and adulthood and, for most adults, especially parents, talking about this stage is often accompanied by...

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The Challenge of Parenting a Child with a Physical Health Condition

Diagnosis at Birth or in the First Few Months Some health conditions are diagnosed pre-birth or are apparent at birth...