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Some of the frequent
questions asked by parents are: ‘What does my child understand about their
diagnosis?’ . . . ‘What can she understand at this age?’ . . . ‘How do I tell
her without causing her to worry?’
This chapter is about
how to build up your child’s self-esteem and confidence to help them cope as
they become aware of the differences between themselves and other children who
don’t have a physical illness. While you will learn to...
If you are lucky, you
may have a strong support structure around you that includes family, friends
and local resources such as parent groups, as well as the more formal health
support systems such as your health visitor and GP....
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Caring for Cystic Fibrosis and Your Relationships
If you are lucky, you
may have a strong support structure around you that includes family, friends
and local resources such as parent groups,...
How Cystic Fibrosis Affects School and Education
Children spend more than 1,000 hours in school each academic year, which is more than 12,000 hours over their childhood and teenage...
Adolescence and Managing Transition to Adulthood and Cystic Fibrosis
Adolescence is the
stage of development between childhood and adulthood and, for most adults,
especially parents, talking about this stage is often accompanied by...
Caring for Cystic Fibrosis in Siblings
It is difficult enough to manage differences between siblings when you have two or more children with cystic fibrosis in the family,...
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LATEST ARTICLES
Caring for Cystic Fibrosis and Your Relationships
If you are lucky, you
may have a strong support structure around you that includes family, friends
and local resources such as parent groups,...
Adolescence and Managing Transition to Adulthood and Cystic Fibrosis
Adolescence is the
stage of development between childhood and adulthood and, for most adults,
especially parents, talking about this stage is often accompanied by...
Caring for Cystic Fibrosis in Siblings
It is difficult enough to manage differences between siblings when you have two or more children with cystic fibrosis in the family,...
How Cystic Fibrosis Affects School and Education
Children spend more than 1,000 hours in school each academic year, which is more than 12,000 hours over their childhood and teenage...
Managing Difference For Cystic Fibrosis Child
This chapter is about
how to build up your child’s self-esteem and confidence to help them cope as
they become aware of the differences...
Feeding Difficulties and Disturbed Eating Attitudes and Behaviours
Feeding difficulties are very common in healthy children as well as in children with a cystic fibrosis, and health visitors are often...
Managing Your Child’s Behaviour around Medical Procedures Of Cystic Fibrosis
In this chapter, we
will look at some of the behavioural difficulties that are common in children
and ways of managing these. The techniques...
Managing Anxiety around Medical Procedures and Hospitals
Procedure-related Distress and Anxiety
For many people, the
thought of having any form of medical test or even going to...
Children’s Understanding of Cystic Fibrosis
Some of the frequent
questions asked by parents are: ‘What does my child understand about their
diagnosis?’ . . . ‘What can she understand...
The Challenge of Parenting a Child with a Physical Health Condition
Diagnosis at Birth or in the First Few Months
Some health
conditions are diagnosed pre-birth or are apparent at birth...
