LATEST ARTICLES

Caring for Cystic Fibrosis and Your Relationships

If you are lucky, you may have a strong support structure around you that includes family, friends and local resources such as parent groups, as well as the more formal health support systems such as...

Adolescence and Managing Transition to Adulthood and Cystic Fibrosis

Adolescence is the stage of development between childhood and adulthood and, for most adults, especially parents, talking about this stage is often accompanied by a groan. The end stage of childhood and the transition to...

Caring for Cystic Fibrosis in Siblings

It is difficult enough to manage differences between siblings when you have two or more children with cystic fibrosis in the family, but this becomes even harder when you have a child...

How Cystic Fibrosis Affects School and Education

Children spend more than 1,000 hours in school each academic year, which is more than 12,000 hours over their childhood and teenage years – so school is an important part of a...

Managing Difference For Cystic Fibrosis Child

This chapter is about how to build up your child’s self-esteem and confidence to help them cope as they become aware of the differences between themselves and other children who don’t have a physical illness....

Feeding Difficulties and Disturbed Eating Attitudes and Behaviours

Feeding difficulties are very common in healthy children as well as in children with a cystic fibrosis, and health visitors are often asked for help with managing feeding. Feeding difficulties tend to...

Managing Your Child’s Behaviour around Medical Procedures Of Cystic Fibrosis

In this chapter, we will look at some of the behavioural difficulties that are common in children and ways of managing these. The techniques that are used to manage the behaviour of healthy children can...

Managing Anxiety around Medical Procedures and Hospitals

Procedure-related Distress and Anxiety For many people, the thought of having any form of medical test or even going to a medical centre or hospital immediately brings on anxious feelings. Having...

Children’s Understanding of Cystic Fibrosis

Some of the frequent questions asked by parents are: ‘What does my child understand about their diagnosis?’ . . . ‘What can she understand at this age?’ . . . ‘How do I tell her...

The Challenge of Parenting a Child with a Physical Health Condition

Diagnosis at Birth or in the First Few Months Some health conditions are diagnosed pre-birth or are apparent at birth or soon after. In these situations, parents are alerted to the...